RebelWheelsBlog is to share my story with you.

Welcome to my page. This is where I, a gal in my early twenties with a rare neuromuscular disease, share my scattered thoughts, as well as my progress with the use of Spinraza.

Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.

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Individuals with SMA have difficulty performing the basic functions of life, like breathing and swallowing. However, SMA does not affect a person’s ability to think, learn, and build relationships with others.

Spinal Muscular Atrophy

What is Spinal Muscular Atrophy? Spinal Muscular Atrophy, or SMA, is a progressive, rare genetic disease, yet it is the number one genetic cause of infant death. There are 4 types of SMA, type 1 being the most severe. SMA Type I is cause of infant death as it is the most severe and common…