Experience of living with axSpA
The purpose of this survey is to learn from you:
- The experience of living with axSpA
- The extent to which you already receive the care as described by the ASAS quality standards (here)
- How important each quality standard is to you
- The barriers you have experienced in your axSpA care
ASIF is supporting this survey, because it will provide evidence about the quality of axSpA care around the globe. ASIF will use the results of this survey to support national patient organizations with information and to raise awareness of the key challenges in axSpA care.
The results of this study will be published in a peer-reviewed journal with the aim of contributing to improvements in axSpA care. We are interested in hearing from people like you and will be gathering data from various countries around the world.