Sickle Cell Society
Supporting and representing people affected by a sickle cell disorder in the UK
The Children’s Activities Programme » Sickle Cell Society
The Children’s Activities Programme » Sickle Cell Society
Family Retreat 2026 – Book now! Friday 31st July – Sunday 2nd August 2026 A safe, supportive weekend for families affected by sickle cell Our Family Retreat is a much-loved annual break that brings families together for a weekend of learning, adventure, connection and fun — all in a safe, understanding environment designed around... Read More
The Sickle Cell Society Podcast » Sickle Cell Society
The Sickle Cell Society Podcast » Sickle Cell Society
The Sickle Cell Society Podcast brings powerful voices and real-life stories from across the sickle cell community to the forefront. Featuring guests with lived experience, healthcare professionals, and special collaborators, each episode explores key topics that matter – from navigating care and raising awareness to championing change. Whether you’re living with sickle cell, supporting someone... Read More
Leeds study to track impact of childhood blood disorders - BBC News
Leeds study to track impact of childhood blood disorders - BBC News
The study will compare NHS and social data to track long term impact of childhood blood disorders.
Gene Therapy Update - SMC (Scottish Medicines Consortium) Decision » Sickle Cell Society
Gene Therapy Update - SMC (Scottish Medicines Consortium) Decision » Sickle Cell Society
The Sickle Cell Society welcomes the decision from the Scottish Medicines Consortium (SMC) to recommend the CRISPR gene therapy exa-cel (exagamglogene autotemcel), also known as Casgevy, as a treatment option for people with severe sickle cell disorder in Scotland. Exa-cel involves extracting and modifying a patient’s own blood stem cells before returning them to their... Read More
Royal London Hospital statement: Update on SDEC pilot for sickle cell patients » Sickle Cell Society News
Royal London Hospital statement: Update on SDEC pilot for sickle cell patients » Sickle Cell Society News
Royal London Hospital statement: Update on SDEC pilot for sickle cell patients News
Petition · Prevent closure of the Sickle Cell Day Unit - United Kingdom · Change.org
Petition · Prevent closure of the Sickle Cell Day Unit - United Kingdom · Change.org
We NEED A PERMANENT Emergency Sickle Cell Day Unit
Wellcome Collection
Legacies of Sickle Cell | Wellcome Collection
Legacies of Sickle Cell | Wellcome Collection
Explore creativity, research and lived experience in this panel discussion on sickle cell disease.
Sickle Cell Society | Search | Wellcome Collection
Sickle Cell Society | Search | Wellcome Collection
Search Wellcome Collection's images, catalogue, stories and events to explore perspectives on health and human experiences.
Sort Your Life Out
Sort Your Life Out
Keep Warm in the Cold Weather » Sickle Cell Society
Keep Warm in the Cold Weather » Sickle Cell Society
Sickle Cell Society Jobs
Sickle Cell Society Jobs
Screening, testing and sickle cell + thalassaemia
Screening, testing and sickle cell + thalassaemia
Tips for teachers
Tips for teachers
Antoinette Brooks Joynina Jones is opinionated, sometimes awkward and has more than her fair share of embarrassing moments too. But Joynina faces more than everyday school drama. She also has sickle cell disorder – a condition that affects her red blood cells and causes excruciating pain. And she shares all her experie
Martha's Rule Survey
Martha's Rule Survey
Join conversation Sickle Cell Awareness Month Webinar
Join conversation Sickle Cell Awareness Month Webinar
New Report : Sickle Cell Patients’ Experiences of the London Ambulance Service » Sickle Cell Society
New Report : Sickle Cell Patients’ Experiences of the London Ambulance Service » Sickle Cell Society
22 APRIL 2025 New Report Reveals Urgent Improvements Needed in Ambulance Care for Sickle Cell Patients in London A new report, commissioned by the London Ambulance Service NHS Trust (LAS) and conducted by the Sickle Cell Society, has highlighted the urgent need for improvements in ambulance care for people living with sickle cell disorder in... Read More
Gene Therapy Approved for sickle cell disorder » Sickle Cell Society
Gene Therapy Approved for sickle cell disorder » Sickle Cell Society
Genomics England drives Sickle Cell research through the Diverse Data…
Genomics England drives Sickle Cell research through the Diverse Data…
Find the contact, social media, service desk, and other important information for Genomics England.
Give Blood
Give Blood
Identifying Research Priorities in Sickle Cell and Genomics
Identifying Research Priorities in Sickle Cell and Genomics
Keep Warm in the Cold Weather » Sickle Cell Society
Keep Warm in the Cold Weather » Sickle Cell Society
Voxelotor approved for treatment of sickle cell » Sickle Cell Society
Voxelotor approved for treatment of sickle cell » Sickle Cell Society
Screening for Sickle Cell and Thalassaemia » Sickle Cell Society
Screening for Sickle Cell and Thalassaemia » Sickle Cell Society
Crizanlizumab : end of NHS supplies February 2024
Crizanlizumab : end of NHS supplies February 2024
No One's Listening - A SCTAPPG Report
No One's Listening - A SCTAPPG Report
Become A Member
Become A Member
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Donate
All-Party Parliamentary Group
All-Party Parliamentary Group
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Blogs
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Contact Details
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FAQs
Opt-In (e-newsletter)
Opt-In (e-newsletter)
Support Groups and other Services
Support Groups and other Services
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Volunteer with us
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Resources » Sickle Cell Society
Resources » Sickle Cell Society
Clinical Trials
Clinical Trials
Coronavirus (COVID-19) & Sickle Cell Disorder
Coronavirus (COVID-19) & Sickle Cell Disorder
Sickle Cell Work and Employment Guide
Sickle Cell Work and Employment Guide
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Run for Sickle Cell
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Birthday Fundraisers
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Give Blood
Fundraise For Us
Fundraise For Us
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