@scn8a
Accelerating research to bring hope and improved outcomes for those with SCN8A
Praxis Submits NDAs for Ulixacaltamide in Essential Tremor and Relutrigine in SCN2A/SCN8A Developmental Epileptic Encephalopathies | NeurologyLive - Clinical Neurology News and Neurology Expert Insights
Praxis Submits NDAs for Ulixacaltamide in Essential Tremor and Relutrigine in SCN2A/SCN8A Developmental Epileptic Encephalopathies | NeurologyLive - Clinical Neurology News and Neurology Expert Insights
Praxis files FDA NDAs for ulixacaltamide and relutrigine, highlighting phase 3 tremor gains and major seizure cuts in rare DEEs.
Caregiver Connect: Open Discussion & Newly Diagnosed - SCN8A Alliance
Caregiver Connect: Open Discussion & Newly Diagnosed - SCN8A Alliance
A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]
Share Your Story
Share Your Story
SCN8A Social Media Frames
SCN8A Social Media Frames
Turn your passion into action; create custom images that show what you stand for and invite friends to join you
View the SCN8A Consensus Family Booklet
View the SCN8A Consensus Family Booklet
Empower your SCN8A family with vital information on diagnosis & treatment. Learn how to advocate for your loved ones & improve their quality of life.
Read the Full Consensus Publication
Read the Full Consensus Publication
Empower your SCN8A family with vital information on diagnosis & treatment. Learn how to advocate for your loved ones & improve their quality of life.
Watch Our Family Education Videos
Watch Our Family Education Videos
Get the support you need as an SCN8A caregiver. Join us to learn from experts about caring for your loved ones with SCN8A-related disorders.
Early Diagnosis is Critical
Early Diagnosis is Critical
Diagnosis and Treatment of SCN8A: A Game-Changer - SCN8A Alliance
Diagnosis and Treatment of SCN8A: A Game-Changer - SCN8A Alliance
Empower your SCN8A family with vital information on diagnosis & treatment. Learn how to advocate for your loved ones & improve their quality of life.
scn8a.info
scn8a.info
SCN8A Global Leaders Alliance
SCN8A Global Leaders Alliance
SCN8A Collaborative Research Network
SCN8A Collaborative Research Network
Tackling Challenging Behaviors in SCN8A
Tackling Challenging Behaviors in SCN8A
Help us advocate by sharing your story!
Help us advocate by sharing your story!
Addressing Behavioral Challenges in SCN8A
Addressing Behavioral Challenges in SCN8A
Take Action: Volunteer to Fight SCN8A and Raise Awareness - SCN8A Alliance
Take Action: Volunteer to Fight SCN8A and Raise Awareness - SCN8A Alliance
Make a difference in the fight against the rare SCN8A disorder. Volunteer with the SCN8A Alliance to drive research and support families.
SCN8A Consensus - Diagnosis & Treatment
SCN8A Consensus - Diagnosis & Treatment
SCN8A Consensus - Comorbidities & Prognosis
SCN8A Consensus - Comorbidities & Prognosis
Download the SCN8A Consensus family booklet
Download the SCN8A Consensus family booklet
Published article: A research roadmap for SCN8A-related disorders
Published article: A research roadmap for SCN8A-related disorders
Despite significant scientific progress since the 2012 discovery that variants in the SCN8A gene can cause human epilepsy, disease mechanisms and best prac
Take Action: Volunteer to Fight SCN8A and Raise Awareness - SCN8A Alliance
Take Action: Volunteer to Fight SCN8A and Raise Awareness - SCN8A Alliance
Using Artificial Intelligence to Improve Treatment Choices for SCN8A-Related Epilepsy - SCN8A Alliance
Using Artificial Intelligence to Improve Treatment Choices for SCN8A-Related Epilepsy - SCN8A Alliance
New Research Sheds Light on How SCN8A Affects the Brain - SCN8A Alliance
New Research Sheds Light on How SCN8A Affects the Brain - SCN8A Alliance
Tell Your SCN8A Story
Tell Your SCN8A Story
A New Approach to Treating SCN8A-Related Disorders - SCN8A Alliance
A New Approach to Treating SCN8A-Related Disorders - SCN8A Alliance
SCN8A Upcoming Meetings and Events
SCN8A Upcoming Meetings and Events
SCN8A Alliance | Official Merchandise
SCN8A Alliance | Official Merchandise
Sign Up for the Latest SCN8A Information
Sign Up for the Latest SCN8A Information
Get Involved - SCN8A Alliance
Get Involved - SCN8A Alliance
SCN8A Newly Diagnosed Guide - SCN8A Alliance
SCN8A Newly Diagnosed Guide - SCN8A Alliance
About SCN8A
About SCN8A
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