@rasopathiesnet
Million Dollar Bike Ride REGISTRATION
Million Dollar Bike Ride REGISTRATION
The Million Dollar Bike Ride brings over 600 cyclists and volunteers to Penn’s campus to ride either 10, 32, or 70 miles starting in the city, and ranging across the Greater Philadelphia region. In 11 years, the MDBR’s 30+ teams have raised over $22 million to fund research grants on the diseases they represent. One in ten Americans is living with a rare disease, and over 300 million individuals are affected worldwide. Register today for the Million Dollar Bike Ride to raise much needed awareness and funding for the rare disease community!
DONATION LINK for Million Dollar Bike Ride
DONATION LINK for Million Dollar Bike Ride
Have fun raising money by asking your family, friends and fans to pledge their support based on your team’s performance. Turn those pledges into donations with every touchdown, goal or run that you score!
2023 Symposium Home Page - The RASopathies Network
2023 Symposium Home Page - The RASopathies Network
How You Can Help!
How You Can Help!
Donate to RASopathies Network here
Make a Donation via credit card
Make a Donation via credit card
WEBINAR on Feeding Problems in RASopathies
WEBINAR on Feeding Problems in RASopathies
NCI RASopathies Study to help us understand what causes RASopathies and how we can better screen for and treat these syndromes
NCI RASopathies Study to help us understand what causes RASopathies and how we can better screen for and treat these syndromes
RASopathies Network Website
RASopathies Network Website
Webinar - Bleeding Issues in RASopathies
Webinar - Bleeding Issues in RASopathies
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Research Study Opportunities
Research Study Opportunities
Oct 14 Webinar Recording: Social Behavior in Rasopathies: Are we missing areas of strength
Oct 14 Webinar Recording: Social Behavior in Rasopathies: Are we missing areas of strength
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Aug 15 Webinar Recording: Covid-19 Vaccine & Kids with RASopathies Webinar
Aug 15 Webinar Recording: Covid-19 Vaccine & Kids with RASopathies Webinar
Jan 24 Webinar Recording: Covid-19 & RASopathies
Jan 24 Webinar Recording: Covid-19 & RASopathies
RASopathies and Covid-19. A webinar
Attention and Executive Function Concerns in Children with Noonan Syndrome: A Guide for Teachers
Attention and Executive Function Concerns in Children with Noonan Syndrome: A Guide for Teachers
4/25 Webinar: "Patterns and therapeutic options in Noonan Syndrome - related lymphedema."
4/25 Webinar: "Patterns and therapeutic options in Noonan Syndrome - related lymphedema."
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