NI Rare Disease Partnership
Working together for the Rare Disease community in NI
Instagram
Instagram
Facebook
Facebook
YouTube
YouTube
Website
Website
Expectation Survey
Expectation Survey
Money Talk Sign up
Money Talk Sign up
Newsletter 2025
Newsletter 2025
Fundraising
Support NIRDP While You Shop (No Extra Cost)
Support NIRDP While You Shop (No Extra Cost)
Donate to support our work
Donate to support our work
Power of Connection – Support Group
Power of Connection – Support Group
MDT Implementation Plan
MDT Implementation Plan
Volunteer Opportunities
Volunteer Opportunities
Membership of NIRDP
Membership of NIRDP
APG Distribution List
APG Distribution List
Support Hub Contact us Form
Support Hub Contact us Form
Living with a rare disease can bring about unique challenges, and navigating the available information and support can sometimes feel overwhelming. That's where our virtual support hub for Northern Ireland comes in. Think of it as your central point of contact for all things related to your rare condition. Our dedicated team is here to provide you with personalized information, offer a listening ear, and guide you towards the resources and services that can make a real difference in your life. Whether you have questions about your diagnosis, need help finding specialist services, are looking for peer support, or simply want someone to talk to who understands, please don't hesitate to reach out – no matter what your query may be. We're here to support you every step of the way.
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