MEF2C Family Foundation
Support | Awareness | Advocacy | Research for MEF2C related disorders
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Pure Ima(gene)ation Benefit 🇨🇦
Pure Ima(gene)ation Benefit 🇨🇦
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NFL’s My Cause My Cleats Auction
NFL’s My Cause My Cleats Auction
MEF2C Research
Discover MEF2C Research
Discover MEF2C Research
Support Mission MEF2C - Donate Today
Support Mission MEF2C - Donate Today
Dr Gray Discusses New Project
Podcast
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Podcast
Dr Gray Discusses New Project
MEF2Cast · Episode
Our Foundation
Our Foundation
Join the MEF2C Family Foundation to support research, connect with families, and learn about MEF2C-related disorders. Our community is dedicated to finding a cure.
MEF2C Patient Registry
MEF2C Patient Registry
Transform hours of medical paperwork into instant answers with Citizen Health's AI Advocate. Built by rare disease families, for rare disease families, get answers to your questions about medications, treatments, and care coordination for rare diseases. Trusted by 50+ patient advocacy groups.
Listening Tour - We Want to Hear From You!
Listening Tour - We Want to Hear From You!
Thank you for taking the time to share your voice. As a newly formed advocacy organization focused on MEF2C-related disorders, we want to ensure that everything we do is shaped by the real needs and experiences of families like yours. This short survey is part of our inaugural listening effort. Your feedback will directly inform our priorities, programs, and advocacy work in the coming months and years. Whether you’re just beginning your journey or have been living with this diagnosis for years, your insights are incredibly valuable. All responses are anonymous and confidential and will only be used to help guide the direction of our organization. Aggregated feedback may be shared back out to the community in a generalized sense where possible. Individual responses will never be shared. Together, we can build something meaningful—for our loved ones and for every family navigating MEF2C.
MEF2C Mini "Retreat" Giveaway
MEF2C Mini "Retreat" Giveaway
As MEF2C caregivers, we know how intense, unpredictable, and all-consuming this journey can be. Between therapies, appointments, equipment, school meetings, and sleepless nights - the idea of getting away for a real retreat feels… impossible. So instead of asking you to come to a retreat - we’re bringing a little bit of that peace to you. We’re giving away a massage gift card to one MEF2C parent or caregiver - because if you're not taking care of you, it’s that much harder to care for your child. This isn’t just about relaxation. It’s about restoring your strength, even for a moment. Because you matter. Your well-being matters. Your health is essential - not optional. (Available to US & Canada at this time) *This giveaway is personally funded by a founder initiative & does not use any donated contributions.
Mighty - App for Parents
Mighty - App for Parents
Welcome to our community platform where families navigating the unique challenges of MEF2C related disorders come together. We recognize that each journey is distinct, but the strength of shared experiences creates bonds that uplift us all. The MEF2C Family Foundation is dedicated to providing a safe space for parents to connect, share insights, and offer encouragement. Whether you're seeking advice, sharing milestones, or simply expressing the joys and struggles of daily life with a rare child, you will find understanding and empathy here. We understand that the road can be tough, but in unity, we discover resilience and hope. Join us as we embrace the power of community, fostering friendships that last a lifetime while working together to advocate for our children. Together, we can turn challenges into opportunities and celebrate the incredible spirit of our children.
MEF2C A.I. Chat
MEF2C A.I. Chat
MEF2C NYC Guide.pdf
MEF2C NYC Guide.pdf
Submit Your MEF2C Moments Here
Submit Your MEF2C Moments Here
We Earn When You Shop!
Earn $ from Raise Right
Earn $ from Raise Right
MEF2C Store
MEF2C Store
Store of MEF2C Family Foundation.
View MEF2C Stars Collection by Littlejackdesignco on Etsy
View MEF2C Stars Collection by Littlejackdesignco on Etsy
Shop Heart Warrior Mama and Kids Apparel for CHD Awareness by Littlejackdesignco located in Carlsbad, California.
Roundup at Walmart
Roundup at Walmart
Premium Christmas Cards, Wedding Invitations, Stationery, Gifts, & Art Prints | Minted
Premium Christmas Cards, Wedding Invitations, Stationery, Gifts, & Art Prints | Minted
Cyber Monday Event: 20% off + free shipping sitewide. Shop unique Christmas and holiday cards, wedding invitations, stationery, personalized gifts, wall art and more sourced from our community of independent artists.
BILLY Footwear- We Earn 10%
BILLY Footwear- We Earn 10%
BILLY Footwear creates shoes with zippers designed to be fashionable and functional, revolutionizing how shoes are put on and taken off. Incorporating universal design, BILLY shoes embrace inclusion. No more velcro. No more stuffing your feet into shoes. Step in unobstructed with our drop-in solution and zip.
WonderFold Wagons
WonderFold Wagons
Travel with WonderFold: Safe and easy to maneuver single/double/quad stroller wagons. Quality baby and kids transportation with parents’ convenience in mind. Perfect for on the go, now your family can cruise the world with ease.
Bookshop - We Earn 10%
Bookshop - We Earn 10%
We are a nonprofit specializing in support, advocacy, and research for those with MEF2C related disorders. Every purchase you make through our shop contributes 10% to our foundation. Thank you for your support!
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MEF2C Awareness Gear
26 products
Gross & Fine Motor
24 products
Hygiene
7 products
Feeding
16 products
Recommended Toys
29 products
Sensory Supports
36 products
Mobility
2 products
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