Your Support Matters!

Our mission is to accelerate research to find a cure for KCNT1-related epilepsy.

You Can Make A Difference - Donate by Dec 31st
You Can Make A Difference - Donate by Dec 31st
Sending Birthday Wishes for those with KCNT1 Disorders
Sending Birthday Wishes for those with KCNT1 Disorders
Be Counted! KCNT1 Inaugural Census Count!
Be Counted! KCNT1 Inaugural Census Count!
Citizen.Health
Citizen.Health
'This is real': Newport Beach family seeks to ensure rare disease funding continues
'This is real': Newport Beach family seeks to ensure rare disease funding continues
Bilingual Volunteers Needed for KCNT1
Bilingual Volunteers Needed for KCNT1
SAMi | The Nighttime Sleep Activity Movement Monitor
SAMi | The Nighttime Sleep Activity Movement Monitor

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Subscribe to our Newsletter
Doctor Registration Home — KCNT1 Epilepsy Foundation
Doctor Registration Home — KCNT1 Epilepsy Foundation
Join our Professional Network - For researchers and clinicians
Join our Professional Network - For researchers and clinicians
KCNT1 Birthday Announcement Sign-up Form
KCNT1 Birthday Announcement Sign-up Form

In the News

Meet Alexandria Wild, @Georgia Power 's Environmental Affairs team and mother to Emmy
Meet Alexandria Wild, @Georgia Power 's Environmental Affairs team and mother to Emmy
KABC KCNT1 Epilepsy 5-25-23.mp4
KABC KCNT1 Epilepsy 5-25-23.mp4
Local Boy’s Journey With Rare Epilepsy Offers Hope to Others
Local Boy’s Journey With Rare Epilepsy Offers Hope to Others
ONCE UPON A GENE - EPISODE 182 - Doctor and Rare Disease Dad Is On A Mission to Accelerate Research — Once Upon A Gene
ONCE UPON A GENE - EPISODE 182 - Doctor and Rare Disease Dad Is On A Mission to Accelerate Research — Once Upon A Gene
New hope for boy with rare epilepsy who has up to 50 seizures a day | ITV News
New hope for boy with rare epilepsy who has up to 50 seizures a day | ITV News

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Contact Us and Join Our Mailing List

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Parents: Register to receive our updates
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Information for families
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Videos on Vimeo

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Digital Natural History Study with Invitae & Ciitizen

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