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ERN-LUNG is a European Reference Network connecting experts and patient organisations to improve care and outcomes for people living with rare lung diseases.
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HOME - ERN-LUNG | Rare Respiratory Diseases
HOME - ERN-LUNG | Rare Respiratory Diseases
Welcome on the homepage of RN-LUNG, a patient-centric network committed Europe-wide to reducing morbidity and mortality from rare lung diseases.
Global PCD conference 2026 — BEAT-PCD
Global PCD conference 2026 — BEAT-PCD
Save the Date! August 19 – 22, 2026 Le Centre Sheraton Montreal Hotel Montreal, Canada Get ready for the inaugural Global PCD Conference—a premier international event focused on the science and clinical care of PCD. The conference will bring together researchers, clinicians, patients and advocac
Bronchiectasis – ERS Bookshop
Bronchiectasis – ERS Bookshop
This book is now available to pre-order – order before 20 February to receive the €10 discount. Ordered copies will be dispatched on publication in March 2026. Edited by James Chalmers, Amelia Shoemark and Stefano Aliberti Contents list (subject to change)1. Patient perspective2. Epidemiology of bronchiectasis3. The ba
ERS Events
LSC 2026 - Multiscale multiomics to dissect lung diseases - from bench to bedside - ERS Respiratory Channel
LSC 2026 - Multiscale multiomics to dissect lung diseases - from bench to bedside - ERS Respiratory Channel
ERS Satellites 2026: COPD, Asthma, ILD, and Sleep and Breathing - ERS Respiratory Channel
ERS Satellites 2026: COPD, Asthma, ILD, and Sleep and Breathing - ERS Respiratory Channel
Respiratory News Live - 16 FEBRUARY, 2026 - ERS Respiratory Channel
Respiratory News Live - 16 FEBRUARY, 2026 - ERS Respiratory Channel
To take part in this event, you must register in advance. REGISTER NOW You are registered to this event 16 February, 2026 | Online 18:30-19:00 CET Attendance is FREE - but registration in advance is required. Register now for the next monthly instalment of Respiratory News Live, a new resource from ERS that keeps medical professionals updated with the very latest and most significant news across the broad spectrum of respiratory medicine and science. Ho
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What is a rare disease? - Rare Disease Day 2026
What is a rare disease? - Rare Disease Day 2026
Patient Partnership Webinar - ERN Lung UnDiagnosed Patients Working Group (WG)
Patient Partnership Webinar - ERN Lung UnDiagnosed Patients Working Group (WG)
The UnDiagnosed Patients Working Group (WG) operates within ERN LUNG. In this WG, clinicians collaborate with patient representatives to develop a standard o...
WBC 2026
WBC 2026
ERN-LUNG Newsletter, Issue 41 (December 2025)
ERN-LUNG Newsletter, Issue 41 (December 2025)
The Pulmonary Hypertension Global Patient Survey (ERS)
The Pulmonary Hypertension Global Patient Survey (ERS)
Shareable abstract3770 patients or their proxies from 90 countries contributed to this first Pulmonary Hypertension Global Patient Survey. The findings highlight the achievements, shortcomings and regional disparities of PH clinical care and research globally. https://bit.ly/3TdkkPu
ERS/ERN Virtual School
ERS/ERN Virtual School
VIEW PROGRAMME VIEW LIVE REGISTER NOW In collaboration with ERN-LUNG21-22 January, 2026 | Online Organisers: M. Kreuter, M. Wijsenbeek, M. Humbert, V. Cottin Faculty: C. Benden, E. Bendstrup, K. Buschulte, J. Cadranel, J. Chalmers, V. Cottin, M. Delcroix, R. Diesler, I. Fajac, M. Griese, A. Gschwendtner, S. Harari, G. Hardavella, A. Hoffmann-Vold, K. Höpker, M. Humbert, J. Jacob, A. Jerrentrup, T. Koudstaal, M. Koziar Vasakova, M. Kreuter, M. Lichtb
Pulmonary Arterial Hypertension, The Battle of a Committed Doctor
Pulmonary Arterial Hypertension, The Battle of a Committed Doctor
Inserm Grand Prize winner, lung specialist and researcher Marc Humbert has devoted his career to deciphering the mechanisms of pulmonary arterial hypertension. From disease characterization to the creation of registries, his research has transformed patient care, paving the way for innovative therapies such as sotatercept – a current source of…
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