Grandparent & Extended Family Virtual Meetup - March 9

DSF State of the Foundation Town Hall | March 12

Chat & Connect Daytime Session | March 30

Chat & Connect Evening Session | March 30

Register for Give Up Your Cup!

Give Up Your Cup: Why I'm In 🎥

Encoded Therapeutics Presents Positive Interim Efficacy Data from Initial Dose Levels of Phase 1/2 Trials Evaluating ETX101 Gene Therapy in Dravet Syndrome

DSF Annual Campaign - Because Families Can't Wait

Patient Care: Find a Doctor or Comprehensive Care Center

Advocate for Dravet

Caregiver Resources

Ciara's Spirit of Hope Award Nomination Form

Start a Fundraiser

Host Your Own Steps Toward a Cure Event

Create a Personal Campaign Page!

Share Your Caregiving Journey

Decoding Dravet Blog

Educational Videos

Shop DSF Merchandise

Visit dravetfoundation.org

My granddaughter has a rare disease. But clinical trials often exclude patients like her. - Dravet Syndrome Foundation

Investing in Smarter Predictions for Dravet Syndrome

Give Up Your Cup (and Pour Hope Into a Cure!)

2026 Caregiver Community Book Club for Dravet Parents

Raising Awareness for Dravet Syndrome: Why Social Media Matters

Stronger Together: Welcome Our 13 Family Network Ambassadors

Register for the FREE CNBC Cures Summit Livestream

National Caregivers Day - UNSEEN Documentary

Adel's Caregiver Story: A Dad’s Words, A Caregiver’s Heart

Behavioral Impact Project – Patient Journeys

Create or Update Your Seizure Action Plan

Choosing Joy: Erika’s Journey of Raising a Child with Dravet Syndrome, a Rare Form of Epilepsy – Patient Worthy

Seventh Annual Purple Day® Expo - The Anita Kaufmann Foundation

Understand Dravet Syndrome through the voices that live it

Rare Disease Week (February 24–26) Washington, D.C.

Epilepsy Awareness Day at Walt Disney World – Transforming Epilepsy Care Through Community, Education & Disney Magic

Bid for a Breakthrough 🏈👟 Charles Byrd MCMC cleats (Size 11)