@dionfoundation
Email Senator Sanders: Give Kids a Chance Act
Email Senator Sanders: Give Kids a Chance Act
LGMD2C PATIENT COMMUNITY
LGMD2C PATIENT COMMUNITY
Dion Foundation LGMD2C patient and family community
OUR WEBSITE
OUR WEBSITE
Discover resources, research, and ways to support children with rare neuromuscular diseases like LGMD. Join us in finding cures and advancing treatments.
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FOR PATIENTS
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Bloomberg Article - Rare Disease Turns Massachusetts Family Into Part-Time Lobbyists
Bloomberg Article - Rare Disease Turns Massachusetts Family Into Part-Time Lobbyists
Maggie Dion, a 9-year-old from Massachusetts, dressed up as President Donald Trump for Halloween to send a lobbying message to Washington as part of her family’s push to renew a lapsed law that gives financial incentives to bio-pharmaceutical companies to develop treatments for the rarest pediatric conditions.
Atamyo Therapeutics Clinical Trial Article
Atamyo Therapeutics Clinical Trial Article
I am BIO Podcast
I am BIO Podcast
LIMBGIRDLE.COM ARTICLE
LIMBGIRDLE.COM ARTICLE
Because it's hereditary, limb-girdle muscular dystrophy (LGMD) can sometimes affect more than one family member. Courtney and Joe have three children, two of whom — Peter, 10, and Maggie, 7 — were diagnosed with LGMD. As the family adjusts to this news, mom and dad are focused on supporting their kids right now, while searching for opportunities that might affect their future.
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