@cppedsa

Chronic Pain Partners Donations - THANK YOU!

EDS Awareness aka Chronic Pain Partners web page

In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness – EDSAwareness.com - EDSAwareness.com

Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use – EDSAwareness.com - EDSAwareness.com

The Silence After Survival – EDSAwareness.com - EDSAwareness.com

Measuring the Unmeasured – What Two New Studies Say About the Head, Neck, and hEDS

Schroth Therapy: An Expert Q&A on Scoliosis Care in EDS – EDSAwareness.com - EDSAwareness.com

Episode 3: Neurodivergence, with Jan Groh, author OhTWIST

From Patient to Researcher: An Interview with Jeevan Mann – EDSAwareness.com - EDSAwareness.com

EDS Newsletter February 2026: Neurodivergence Podcast

Book Review: The Chemistry Test – EDSAwareness.com - EDSAwareness.com

The Hidden Disabilities Sunflower Lanyard: Making the Invisible Visible – EDSAwareness.com - EDSAwareness.com

New App Can Help Screen for EDS – EDSAwareness.com - EDSAwareness.com

Research Round-up, Edition Six – EDSAwareness.com - EDSAwareness.com

Podcast - EDSAwareness.com

Navigating the Holidays with EDS – EDSAwareness.com - EDSAwareness.com

A Cheerful Gift Guide for People with EDS, Chronic Pain, Chronic Illness, Disability, and Those Who Love Them: Chronic Pain Partners’ 2025 Gift Guide – EDSAwareness.com - EDSAwareness.com

Episode 2: Medically Complex Children – EDSAwareness.com - EDSAwareness.com

“Watch Out For Mum” - Wrongful Child Abuse Allegations Harms Whole Family – EDSAwareness.com - EDSAwareness.com

Boston Screening of COMPLICATED Thu, Dec 11, 2025 at 7:00 PM | Eventbrite

EDS Newsletter December 2025: In Loving Memory of John Ferman, our Founder

EDS Holiday Hacks: Twelve Tips for Setting Yourself Up for Success by Realigning Your Expectations – EDSAwareness.com - EDSAwareness.com

Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it – EDSAwareness.com - EDSAwareness.com

My Wife Had EDS and Did Not Know IT! - EDSAwareness.com

AWOL Zebra Podcast: Building Community (and Laughs) Around EDS – EDSAwareness.com - EDSAwareness.com

New Study Reveals Immune Dysfunction in Hypermobile Ehlers–Danlos Syndrome – EDSAwareness.com - EDSAwareness.com

EDS Unplugged Podcast, Episode 1: Invisible Disabilities Awareness with Kate Schultz – EDSAwareness.com - EDSAwareness.com

Interview with Georgina Frankie: Author of "The Chemistry Test" – EDSAwareness.com - EDSAwareness.com

From Diagnosis Odyssey to Scientific Vision: A New Genetics EDS Lab in Norway Opens Its Doors – EDSAwareness.com - EDSAwareness.com

Update On Gene Linked to Hypermobile EDS – EDSAwareness.com - EDSAwareness.com

Building a Supportive and Caring Medical Team No Matter Where You Live – EDSAwareness.com - EDSAwareness.com

EDS Newsletter October 2025: New Study hEDS gene, New EDS Podcast

September is Pain Awareness Month – EDSAwareness.com - EDSAwareness.com

Can I Pet It?: Understanding Animal Helpers – EDSAwareness.com

Research Round-up, Edition Five: Pediatrics – EDSAwareness.com

Discover Chronius health care on edsawareness.com

The Quiet Weight of Chronic Illness Grief – EDSAwareness.com

“It’s All in Your Head”: New Study Confirms What hEDS Patients Have Been Told for Decades – EDSAwareness.com

Out of Spoons: A Spoonie-Centered Coloring Book from Author and Artist Jules Machias – EDSAwareness.com

EDS Newsletter August 2025: Service Animals, Grief, New EDS Care and more

Slamdance Unstoppable Road Tour - COMPLICATED film showings

EDS Awareness's Patient Guides

EDS Types, Symptoms, and Prevalence | EDSAwareness.com

Welcome to Lipedema Awareness Month – EDSAwareness.com

POTS, EDS, and the Scorching Sun: Heat Intolerance & Your Summer Survival Guide – EDSAwareness.com

The World Premiere of Complicated: The Film That Named Itself! – EDSAwareness.com

The Extra Mile: Why This 79-Year-Old Pioneering Physician Is Running the Boston Marathon – EDSAwareness.com

Hyp+Care: A New Clinic for Chronic Conditions including EDS In New York & Beyond – EDSAwareness.com

Jen Kain about her new EDS doc “Exhausted Existence” – EDSAwareness.com

We’re Not Confused - The System Is: Community Survey Shouts for EDS/HSD Classification Change – EDSAwareness.com

EDS Awareness newsletters archive

It's EDS Awareness Month! - EDS Newsletter May 2025

New CCI Research: Understanding the Frequency of Neurosurgical Interventions in Connective Tissue Disorders – EDSAwareness.com

Why Is It So Hard To Get A Genetics Appointment For My Child? – EDSAwareness.com

Understanding Your Flare Fettered Friend – EDSAwareness.com

New Pain Killer on the Market: Suzetrigine – EDSAwareness.com

22 Ways to Celebrate EDS and HSD Awareness Month – EDSAwareness.com

Current Administration Threatens Medicaid - April 2025 – EDSAwareness.com

Documentary Films on Ehlers-Danlos Syndrome – EDSAwareness.com

EDS & Neurodivergence Special - EDS Newsletter March 2025

Research Round-Up, Edition 4: Neurodivergence – EDSAwareness.com

Exhausted Existence – A New Documentary on Living with EDS   – EDSAwareness.com

EDS Community Favorites List - add yours!

Neurodiversity Celebration Week March 17-23rd 2025

EDS Expenses Exposed: Report Peeks at Financial Burden of Living with Ehlers-Danlos – EDSAwareness.com

Neurodivergence and Hypermobility: The Autism-EDS Connection  – EDSAwareness.com

Volunteer Writer sought

Webinar Coordinator sought

2025 Feb Slamdance Lineup includes COMPLICATED film

How Rebecca Yarros’ “Fourth Wing” Embodies Ehlers-Danlos Syndrome  – EDSAwareness.com

Digesting the Facts: Tackling Gastrointestinal Challenges in EDS – EDSAwareness.com

EDS and Neurodiversity: The Connection

EDS & Autism Special - EDS Newsletter January 2025

EDS Awareness Feedback Survey - drive 2025 for us

Research Round-Up, Edition Three – EDSAwareness.com

Part Six: Dear Doctor: How To Avoid Causing Clinician-Associated Trauma – EDSAwareness.com

Jacqueline L. Wolf, M.D. - About the Author

EDS and Liver Disease Survey - Dr. Jacqueline Wolf at Beth Israel

EDSed Episode 4: Dr. Jacqueline Wolf on GI symptoms & Endometriosis

New Research Study Finds Everything is Connected, As Many Patients Suspected – EDSAwareness.com

Emotions When Choosing Self-Health Over Dysfunctional Family Dynamics – EDSAwareness.com

Navigating the Holidays with EDS – EDSAwareness.com

Research News: Could a Blood Test for hEDS & HSD Be Possible? – EDSAwareness.com

POTS vs. Anxiety: The Misdiagnosis Maze – EDSAwareness.com

Chronic Illness Apps: Why Use Them and Ones to Try for EDS Management – EDSAwareness.com

Low-Dose Naltrexone: Possible Pain Relief in a Small Package – EDSAwareness.com

New HEDS Biomarker found - EDS Newsletter November 2024

Overcoming Barriers With Creativity: Watch Lego Oma – EDSAwareness.com

Nat Geo: Why double-jointed people are more likely to have health problems

Dysautonomia International: Dysautonomia Awareness, Dysautonomia Advocacy, Dysautonomia Advancement

Research News: Could a Blood Test for hEDS & HSD Be Possible? – EDSAwareness.com

New Research Identifies Potential Biomarkers for Diagnosing Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders - The Ehlers Danlos Society

Book Review of Rebel Health: Pioneering Patient-Led Solutions in Healthcare by Susannah Fox – EDSAwareness.com

Part 5: Healing the Hurt: How To Handle Clinician-Associated Trauma – EDSAwareness.com

Book Review of New EDS Book Symptomatic  – EDSAwareness.com

Research Round-Up, volume 2 – EDSAwareness.com

Live Webinar Aug 9 with Susannah Fox, Author of Rebel Health – EDSAwareness.com

Find Answers Faster: The EDS411 Living Library – EDSAwareness.com

Documentary Films on Ehlers-Danlos Syndrome – EDSAwareness.com

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Understanding the EDS Pain Maze during Pain Awareness Mont (Sept)

EDS Back to School Special – Prep for K-12, College & Accommodations – EDSAwareness.com

Explore Our Revamped Website & New Content! 🌐💡 - EDS Newsletter September 2024

Follow us on Instagram

Beth O'Hara Memorial Service – August 29th, 2024

Research Round-Up, Edition One – EDSAwareness.com

Help Shine a Spotlight: Unveiling the Hidden Triad of MCAS, Hypermobility, and Dysautonomia Through an Upcoming Film – EDSAwareness.com

Got the Barometric Blues? – EDSAwareness.com

You Made a Difference in Scientific Research for hEDS – EDSAwareness.com

Norris Lab Finds HEDS Gene: Kallikrein - EDSAwareness.com

July 2024: Scientific Breakthrough: Possible hEDS Gene Found! - Ehlers-Danlos News

Podcasts on Ehlers-Danlos Syndrome - EDSAwareness.com

POTS, EDS, and the Scorching Sun: Heat Intolerance & Your Summer Survival Guide - EDSAwareness.com

Top Ten Reasons EDS SUCKS! - EDSAwareness.com

2022 Interview with Dr. Norris on finding the genetic cause(s) for hypermobile EDS and much more - EDSAwareness.com

EDSed Episode 1: The Norris Lab - EDSAwareness.com

You Made a Difference in Scientific Research for hEDS - EDSAwareness.com

Lipedema Foundation

Clinician-Associated Trauma Series

EDS Types, Symptoms, and Prevalence | EDSAwareness.com

Books on Ehlers-Danlos Syndrome - EDSAwareness.com

THINGS THAT SUCK ABOUT EDS--WHICH ONE IS THE WORST?

Play it Forward: Contribute to the EDS Community Playlist on Spotify This May! - EDSAwareness.com

Grab your Play-It- Forward t-shirt here before May 21, 2024!

Complicated - the must-watch documentary on Ehlers-Danlos Syndrome - EDSAwareness.com

Chronic Pain Partners impact over the last twelve years

A Mother’s Day Shout Out from An EDS Mom and The Producer of Complicated  - EDSAwareness.com

EDS Awareness Month Special Edition: New EDS Film! EDS books, Awareness Campaign!

Filmmaker Andrew Abrahams on the New EDS Documentary 'Complicated' - EDSAwareness.com

A Mother’s Day Shout Out from An EDS Mom and The Producer of Complicated  - EDSAwareness.com

The Rise of Clinician-Associated Trauma in the Doctor-Patient Relationship - EDSAwareness.com

CPP EDS Awareness Patient Guides

April EDS News: New EDS Clinic! Tax Deductions and more.

Outcomes of Craniocervical Instability Fusion Surgery in People with EDS - EDSAwareness.com

Decoding Medical Deductions: A Chronic Illness Patient’s Guide to Navigating Healthcare-Related Expenses and Taxes - EDSAwareness.com

HEDS or HSD: Study Questions Diagnostic Criteria - EDSAwareness.com

Complicated — Open Eye Pictures - a film about medical kidnapping and EDS

A New EDS Clinic Coming to a Town Near You (Via Telehealth) - EDSAwareness.com

Popular People With Ehlers-Danlos Syndrome - EDSAwareness.com

Unraveling Tethered Cord for EDS Patients (simplified version) - EDSAwareness.com

Medical Gaslighting as a Source of Clinician-Associated Trauma - EDSAwareness.com

EDS Advocates to Follow on Social Media - EDSAwareness.com

February 2024 EDS News & Updates

Children’s Book about Ehlers-Danlos Published - EDSAwareness.com

Know Your Love Language? Learn to Speak it Well Despite Chronic Illness - EDSAwareness.com

Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks - EDSAwareness.com

2024 EDS Awareness Survey - What Topics to see?

A New EDS Clinic Coming to a Town Near You (Via Telehealth) - EDSAwareness.com

December 2023 EDS News & Updates

New 2023 MCAS Patient Guide

It’s Worth a Shot: Prolotherapy, PRP & related therapy for EDS

Rising Doctor Making an Impact on hEDS: Q&A with MUSC MD/PhD Student Roman Fenner

hEDS researchers explain clinician-associated trauma - Part II

10 clever comebacks for handling offensive comments about hEDS - EDSAwareness.com

Gut Check: Gluten Intolerance, Celiac Disease, or Mast Cell Reaction? - EDSAwareness.com

Toxic Positivity: Recognizing It and Preserving Your Spoons - EDSAwareness.com

EDS & Psychological Medical Trauma: An Introduction (Part I)

EDS, Dating & Internalized Ableism - EDSAwareness.com