@FragileXAustralia
Empowering & supporting the Fragile X community
FX News Summer 2025
FX News Summer 2025
Win a JAC T9 Ute! Enter the raffle supporting FXAA
Win a JAC T9 Ute! Enter the raffle supporting FXAA
Shout For Good
Survey | Measuring Quality of Life for People with Rare Genetic Conditions and their Carers
Survey | Measuring Quality of Life for People with Rare Genetic Conditions and their Carers
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
On YouTube | Creating Visuals and Social Stories to make routines and adventures feel calmer, more manageable and more connected for everyone.
On YouTube | Creating Visuals and Social Stories to make routines and adventures feel calmer, more manageable and more connected for everyone.
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
On Youtube | Understanding FXTAS, webinar on 23 September 2025
On Youtube | Understanding FXTAS, webinar on 23 September 2025
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Webinar | Microboards (live only). 23 AUGUST 2025
Webinar | Microboards (live only). 23 AUGUST 2025
Discussion: New Diagnosis of Fragile X syndrome - What Next. 19 AUGUST 2025
Discussion: New Diagnosis of Fragile X syndrome - What Next. 19 AUGUST 2025
22 July 2025 | Lighting up for World Fragile X Day
22 July 2025 | Lighting up for World Fragile X Day
Webinar | FX Research Roundup. 17 JULY 2025
Webinar | FX Research Roundup. 17 JULY 2025
On Youtube | Snapshot on Supporting Behaviours in Young Children with Fragile X syndrome
On Youtube | Snapshot on Supporting Behaviours in Young Children with Fragile X syndrome
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
On Youtube | Sensory Processing Diets and Fragile X syndrome, Bev Kadish. 12 JUNE AEST:30pm
On Youtube | Sensory Processing Diets and Fragile X syndrome, Bev Kadish. 12 JUNE AEST:30pm
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
On Youtube | IVF & PGD | Testing and Screening for Fragile X, Dr Mark Livingstone, 29 April 2025
On Youtube | IVF & PGD | Testing and Screening for Fragile X, Dr Mark Livingstone, 29 April 2025
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Webinar Q&A | Special Disability Trusts, Marg Duncan. 29 MAY 7pm AEST
Webinar Q&A | Special Disability Trusts, Marg Duncan. 29 MAY 7pm AEST
On Youtube soon - Webinar Q&A | IVF and PGD and Fragile X. Dr Mark Livingstone, 29 April 2025
On Youtube soon - Webinar Q&A | IVF and PGD and Fragile X. Dr Mark Livingstone, 29 April 2025
Our 2025 webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation. The program for the first half of 2025 is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome, and planning for the future, and health aspects for women who are Fragile X premutation carriers. We're delighted to welcome key speakers back to the program. Such as GP Dr Jonathan Cohen, occupational therapist Bev Kadish, endocrinologist Dr Amanda Vincent, IVF specialist Dr Mark Livingstone, disability-specialist lawyer Margaret Duncan and, later in the year, psychologist Dr Marcia Braden.
On Youtube |Fragile X syndrome & ASD, differential diagnosis, webinar recording (2024)
On Youtube |Fragile X syndrome & ASD, differential diagnosis, webinar recording (2024)
On Youtube | FXPOI - What do I Need to Know? webinar recording (17 March 2025)
On Youtube | FXPOI - What do I Need to Know? webinar recording (17 March 2025)
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
On Youtube | Medications and Fragile X syndrome, webinar recording (20 Feb 2025)
On Youtube | Medications and Fragile X syndrome, webinar recording (20 Feb 2025)
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
FX Webinar / Q&A Series 2025
FX Webinar / Q&A Series 2025
Our 2025 webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation. The program for the first half of 2025 is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome, and planning for the future, and health aspects for women who are Fragile X premutation carriers. We're delighted to welcome key speakers back to the program. Such as GP Dr Jonathan Cohen, occupational therapist Bev Kadish, endocrinologist Dr Amanda Vincent, IVF specialist Dr Mark Livingstone, disability-specialist lawyer Margaret Duncan and, later in the year, psychologist Dr Marcia Braden.
Catch up on our news! 2024, and looking ahead to 2025
Catch up on our news! 2024, and looking ahead to 2025
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On Youtube| Fragile X (FMR1) Premutation - an Update, webinar recording (Nov 2024)
On Youtube| Fragile X (FMR1) Premutation - an Update, webinar recording (Nov 2024)
Presented by Dr Jonathan Cohen MD and introduced by Andrea Lee (Executive Director of Fragile X Society of New Zealand) this webinar is an update and overvie...
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